Waar? Ghent University Hospital

Wanneer? 07.01.2023

It is our pleasure to announce that our next meeting which will be held on January 7th 2023 at Ghent University Hospital. Besides the members of our network, as we are discussing Patient Pathways we would like to open the meeting to invite any interested Health Care Professional (ex. General Practioners, Specialists, Physical Therapist, etc) who are interested in atending this important meeting from all over Belgium. Please spread this invitation to any collegue you think who might be interested.

10u30 – 10u45: Welcome and opening
• Prof. dr. V. Smith (chair of the Flemish Network on rare connective tissue diseases)
• Prof. dr. F. Malfait (co-chair of the Flemish Network on rare connective tissue diseases)
• Mrs. Charissa Frank (secretary of the Flemish Network on rare connective tissue diseases and patient representative for the EDS)

10u45 - 11u45: Break-out rooms
BREAK-OUT room 1: patient pathway on Ehlers Danlos Syndrome (EDS)
Mrs. Charissa Frank (secretary of the Flemish Network on rare connective tissue diseases and patient representative for the EDS)
Prof. dr. F. Malfait (co-chair of the Flemish Network on rare connective tissue diseases)

BREAK-OUT room 2: patient pathway on Idiopathic Inflammatory Myopathies (IIM)
Dr. Y. Piete (second line representative for the Flemish Network on rare connective tissue diseases; chair of the working group rare connective tissue diseases for the Koninklijke Belgische Vereniging voor Reumatologie [KBVR])
Prof. dr. E. De Langhe (chair of the working group rare connective tissue diseases for the Koninklijke Belgische Vereniging voor Reumatologie [KBVR])

11u45 – 12u00: Patient pathway on systemic sclerosis: update
Prof. dr. V. Smith (chair of the Flemish Network on rare connective tissue diseases)

12u00 – 13u00: small working lunch with preliminary proposals concerning the patient pathways (EDS and IIM)

Please mail to Charissa Frank (charissa.frank@bindweefsel.be) by December 15th your name, profession and which break-out session that you will atend. At this time only Health Care Professionals can register.

As usual, you may also forward this invitation to colleagues from your own multidisciplinary team from whom you think they would like to be involved in our network meetings.